Am into my second year of botox injections for migraines, i have IIH(idiopathic intracranial hypertention) high fluid pressure.
I am also takin acetazolomide and topamax and other meds, but the botox shots do help somewhat, but dont seem to work as well as they use to, as they use to be a god send where as now i hoping to find something else! But botox works differently for everyone! I wish everyone well on there journey :)
So, let me just start by explaining that every headache is not a migraine. Who knew. I suffered daily bouts for approximately 10 years after a car crash. I would push through, suck down Excedrin migraine like tic tacs, use my prescription medication sparingly, (I hate to drool on my own shirt) and if I was lucky throw up. then about 9 months ago I was sent for Botox injections.
Within 24 hours of the treatment, it was like the clouds parted and the sun came out. My head did not ache, I was moving my eyes (because I did not realize I didn't do that, or that I dd not blink for that matter). Now remember, this treatment doesn't work for everyone, but it so did for me and I will never turn back.
One of the most important things to look for is a Dr. who is experienced in migraine therapy and the practice of Botox (plastic surgeon). My referring Dr. did research and sent me to a cutting edge plastic surgeon leading the way in migraine therapy.
I have injections every three months and will never be without them. My insurance pays for them so I am fortunate. Don't get me wrong I am not completely symptom free, but I do not suffer everyday. If I have a migraine once or twice a month hell that's walking on water. Neck pain? Not anymore only when I have a headache.
For me, this is a GOD sent!
I was getting Botox for chronic migraine for about 2 years, prior to this I was lucky to go a few hours a month without pain, including 1-2 acute attacks per week. After a few treatments I was going up to a few weeks without ANY pain! I would still get acute attacks, but they were far less frequent (maybe once a month), less severe, wouldn't last as long, and medications were more effective (as I wasn't taking them as frequently anymore). I hate needles, but it was far better than the pain I would suffer without Botox. The only side effects I had was a few days of headache after each treatment and the obvious "frozen" forehead, but was constantly being told how young I looked (added benefit)! The first couple treatments my forehead felt heavy due to the muscles being paralyzed but it wasn't long before I didn't notice it anymore. I wasn't getting horrible side effects like what I had from the various prophylactic medications I've tried over the years.
The cost definitely is definitely worth it for me, but unfortunately the treatment (even being covered under the health system) leaves me out of pocket a few hundred dollars each time and I can't currently afford it. I'm 2 months overdue for treatment and the pain is coming back more and more each day, and starting to get back to the point where I can't function properly through the daily pain.
I have been getting Botox injections for over a year. The effects seem to kick in after about two weeks and wear off about six weeks before the next set of injections. That leaves a lot of time with daily pain. I no longer get the injections on the back of my neck because it cause too much neck strain and pain. I get the injections in my scalp, forehead, and temples. Although I get about six weeks of relief, I am currently seeking other things to help relieve my daily and constant pain.
For me it made the headache worse. It felt as thou someone was pushing on my forehead for months and my neck felt tired all the time. I had agreed to try again, without the shots to my forehead, but my doctor said it wasn't worth it if made things worse.
Have had Botox A several times and while it helps migraines/tension headaches/Chiari headaches post-surgery, the effects are short lived (1-2 months). Getting Botox B tomorrow to see if it will be better.
Yes I had 33 Botox injections and it made my migraine horrendously worse!
I've had it for awhile. But seems my severity of migraines almost every day/night is starting back.
I have been getting botox for over a year, i still get migraines, but i have not been to the hospital since . Since i been getting botox i am now able to catch them before they become bad ... i will take that !!
I have been getting botox for about three years now, faithfully every three months. If i get a bruise its tiny ans he administers the injections with such preciseness the pain is minimal compared to migraines. I am all but migraine free. It is liquid gold to me.
Dropped from daily to 1-4 a month average. I've had botox injections the last 3yrs. The first time was amazing. As with anything with migraines mine are chronic and daily basis since 2006, so the triggers and effect are always changing saying this the injections had to be changed as well. Where they were injected the first time didn't work as to where they were injected the next time. Mine has to be done every 2-3 months. I have no insurance so it's sometimes hard to come up with the money. I also take Topamax for preventative. Watch my triggers always looking and scoping out the new triggers. All in all of course I still get migraines but Thank God they are not what they were or as often. Life is much better with botox and topamax as for the cost I will do what I can as long as I can and that's all any of us can do.. I'm going today to try the Daith ear piercing. Who knows it just may be another preventative to add to the list, if not maybe it will grow back! Blessings to all that endure this horrific pain and just pain in the backside!
The first time I tried boric injections for my chronic migraines....my neck head and back hurt more for the first few days before it sent back to normal severe neck .. Upper back muscle pain...that I have delt with for almost 5 years now with no relief. But have done three injections for my chronic migraines And no more extreme neck..back..head pain. It only lasts one month of no migraines just regular minor headaches which I'll take than migraines every day.
It works for me not only for migraines but TJM. I suffer from polymyositis a muscle disorder that affected vmy speech, body movement including bmy facial muscles. I can't describe how immediately works on my jaw and facial muscle improving my speech as well. I can smile more and relax my all my facial expressions.
I have been getting Botox for chronic migraine for about a year and a half now. I have had varied results every time. It depends on the time of year. It seems to be less effective during the winter because the high altitude that I live at makes my migraines worse especially when there are frequent barometric pressure and temperature changes. I was diagnosed with myofascial pain syndrome and the Botox helps with the muscle spasms I get on my scalp.